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  1. 1.   Development of patient reported outcome measures assessing tumor pain intensity and tumor pain interference for individuals with neurofibromatosis type 1 and plexiform neurofibromas: qualitative findings
  2. Al Ghriwati, Nour; Struemph, Kari; Martin, Staci; Little, Paige; Baker, Melissa; Levine, Jason; MacKenzie, Cynthia; Tonsgard, James; Schorry, Elizabeth K; Walsh, Karin S; Wolters, Pamela L
  3. Journal of Patient-Reported Outcomes. 2025, Apr 30; 9(1): 46.
  1. 2.   Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials
  2. Merker, Vanessa L; Thompson, Heather L; Wolters, Pamela L; Buono, Frank D; Hingtgen, Cynthia M; Rosser, Tena; Barton, Belinda; Barnett, Carolina; Smith, Taylor; Haberkamp, Diana; McManus, Miranda L; Baldwin,Andrea; Moss, Irene P; Röhl, Claas; Martin, Staci
  3. Clinical Trials (London, England). 2023, Dec 23; 17407745231205577.
  1. 3.   COVID-19 Patient-Reported Symptoms Using FLU-PRO Plus in a Cohort Study: Associations With Infecting Genotype, Vaccine History, and Return to Health
  2. Richard, Stephanie A; Epsi, Nusrat J; Lindholm, David A; Malloy, Allison M W; Maves, Ryan C; Berjohn, Catherine M; Lalani, Tahaniyat; Smith, Alfred G; Mody, Rupal M; Ganesan, Anuradha; Huprikar, Nikhil; Colombo, Rhonda E; Colombo, Christopher J; Madar, Cristian; Jones, Milissa U; Larson, Derek T; Ewers, Evan C; Bazan, Samantha; Fries, Anthony C; Maldonado, Carlos J; Simons, Mark P; Rozman, Julia S; Andronescu, Liana; Mende, Katrin; Tribble, David R; Agan, Brian K; Burgess, Timothy H; Pollett, Simon D; Powers,John
  3. Open Forum Infectious Diseases. 2022, Jul; 9(7): ofac275.
  1. 4.   Prospective Assessment of Symptoms to Evaluate Asymptomatic SARS-CoV-2 Infections in a Cohort of Health Care Workers
  2. Goguet, Emilie; Powers,John; Olsen, Cara H; Tribble, David R; Davies, Julian; Illinik, Luca; Jackson-Thompson, Belinda M; Hollis-Perry, Monique; Maiolatesi, Santina E; Pollett, Simon; Duplessis, Christopher A; Wang, Gregory; Ramsey, Kathleen F; Reyes, Anatalio E; Alcorta, Yolanda; Wong, Mimi A; Ortega, Orlando; Parmelee, Edward; Lindrose, Alyssa R; Moser, Matthew; Samuels, Emily C; Coggins, Si'Ana A; Graydon, Elizabeth; Robinson, Sara; Campbell, Wesley; Malloy, Allison M W; Voegtly, Logan J; Arnold, Catherine E; Cer, Regina Z; Malagon, Francisco; Bishop-Lilly, Kimberly A; Burgess, Timothy H; Broder, Christopher C; Laing, Eric D; Mitre, Edward
  3. Open Forum Infectious Diseases. 2022, Mar; 9(3): ofac030.
  1. 5.   Performance of the inFLUenza Patient-Reported Outcome Plus (FLU-PRO Plus) Instrument in Patients With Coronavirus Disease 2019
  2. Richard, Stephanie A; Epsi, Nusrat J; Pollett, Simon; Lindholm, David A; Malloy, Allison M W; Maves, Ryan; Utz, Gregory C; Lalani, Tahaniyat; Smith, Alfred G; Mody, Rupal M; Ganesan, Anuradha; Colombo, Rhonda E; Colombo, Christopher J; Chi, Sharon W; Huprikar, Nikhil; Larson, Derek T; Bazan, Samantha; Madar, Cristian; Lanteri, Charlotte; Rozman, Julia S; English, Caroline; Mende, Katrin; Tribble, David R; Agan, Brian K; Burgess, Timothy H; Powers,John
  3. Open Forum Infectious Diseases. 2021, Oct 8; 8(12): ofab517.
  1. 6.   Living with a central nervous system (CNS) tumor: findings on long-term survivorship from the NIH Natural History Study
  2. Rogers, James L; Vera, Elizabeth; Acquaye, Alvina; Briceno, Nicole; Jammula, Varna; King, Amanda L; Leeper, Heather; Quezado, Martha M; Gonzalez Alarcon, Javier; Boris, Lisa; Burton, Eric; Celiku, Orieta; Choi, Anna; Christ, Alexa; Crandon, Sonja; Grajkowska, Ewa; Leggiero, Nicole; Lollo, Nicole; Penas-Prado, Marta; Reyes, Jennifer; Siegel, Christine; Theeler, Brett J; Timmer, Michael; Wall, Kathleen; Wu, Jing; Aldape, Kenneth; Gilbert, Mark R; Armstrong, Terri S
  3. Neuro-oncology practice. 2021, Aug; 8(4): 460-474.
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