Advocacy Summit

Friday November 20, 2020

1:00- 3:00 PM EST

Patient/Advocacy Summit

Session Chairs: Stephanie Lee, M.D., Fred Hutchinson Cancer Research Center; Kirk Schultz, M.D., University of British Columbia

Moderators: Meredith Cowden, M.A., LPCC-S, Cowden Foundation; Daniel Wolff, M.D., University of Regensburg

1:00 p.m. Introduction and Goals

1:05 p.m. Four NIH Consensus Working Group Presentation
Presenters: Katie Schoeppner, M.S.W., LICSW, Be The Match; Michelle Bishop, Ph.D., Coping with Cancer and Caregiving, LLC; Susan Stewart, BMT InfoNet; Meredith Cowden, M.A., LPCC-S, Cowden Foundation; Peggy Burkhard, NbmtLINK; Guy Bouguet, France Lymphome Espoir; Christina Ferraro, C.N.P., Cleveland Clinic Foundation; Chiara DeBiase, M.Sc., B.Sc., MCSP, Anthony Nolan

1:30 p.m. Menti Test Survey
Helene Schoemans, M.D., Ph.D., University Hospitals Leuven, KU Leuven, Leuven, Belgium

1:35 p.m. Crucial Advocacy Topics
Patient and Caregiver Education and Support
Presenter: Katie Schoeppner, M.S.W., LICSW, Be The Match                      

1:50 p.m. Neurocognitive and Psychosocial Impact
Presenter: Susan Stewart, BMT InfoNet

2:05 p.m. Survivorship and Long-Term Care
Presenters: Naomi Pineda, Patient; Christina Ferraro, C.N.P., Cleveland Clinic Foundation

2:20 p.m. Menti Survey
Helene Schoemans, M.D., Ph.D., University Hospitals Leuven, KU Leuven, Leuven, Belgium

2:35-3.00 p.m. Open Discussion; Live Q&A discussion open to all participants

3.00-3.15 p.m. Closing remarks
Meredith Cowden, M.A., LPCC-S, Cowden Foundation

To register for the Advocacy Summit, please click here.