Overview
Rockville, MD 20850
The Cancer Moonshot Biobank is a longitudinal biospecimen collection study that engages patients and medical institutions across the U.S. in the donation of biospecimens (tumor tissue and blood) and medical data over the course of cancer treatment. The biospecimens and data will be used in research to better understand and improve cancer treatments.
Participant and provider engagement is a cornerstone of the study. Engagement aspects include the return of clinical results directly to participants and their providers; an online engagement website in English and Spanish with secure login for viewing signed consent forms and clinical reports; electronic informed consent in English and Spanish; return of aggregate results via an annual report; funding of local, investigator-initiated engagement projects; and an External Scientific Panel (ESP) of patient advocates, oncologists and nurses, and health disparities experts that provides regular input to the study.
In this Participant and Provider Engagement Workshop, we will assess Cancer Moonshot Biobank study progress and opportunities in engagement. Attendees will hear from the Cancer Moonshot Biobank and other research programs about successful engagement approaches and consider potential new approaches and best practices for engagement in biobanking.
- Two-day workshop with a mix of presentations, panel discussions and smaller breakout sessions
- Limited in-person attendance to facilitate small group discussions and networking
- Key workshop participants include members of the Cancer Moonshot Biobank’s External Scientific Panel and local engagement investigator teams along with guest speakers from other engagement-focused research programs such as the NIH All of Us Research Program and the NCI Participant Engagement for Cancer Genome Sequencing Network (PE-CGS)
In-person attendance is by invitation only, with virtual attendance available through WebEx (link to be provided)
Registration Deadline for virtual attendance is April 26, 2024