Workshop Goals

The Cancer Moonshot Biobank is a longitudinal biospecimen collection study that engages patients and medical institutions across the U.S. in the donation of biospecimens (tumor tissue and blood) and medical data over the course of cancer treatment.  The biospecimens and data will be used in research to better understand and improve cancer treatments.

Participant and provider engagement is a cornerstone of the study.  Engagement aspects include the return of clinical results directly to participants and their providers; an online engagement website in English and Spanish with secure login for viewing signed consent forms and clinical reports; electronic informed consent in English and Spanish; return of aggregate results via an annual report; funding of local, investigator-initiated engagement projects; and an External Scientific Panel (ESP) of patient advocates, oncologists and nurses, and health disparities experts that provides regular input to the study. 

This two-day workshop will bring together the local engagement investigators and the ESP to assess and advance our work in participant and provider engagement, and to provide complementary and new perspectives from guest speakers.  The key goals of the workshop are as follows:

• Assess Cancer Moonshot Biobank study progress and opportunities in engagement.
• Discuss and evaluate local engagement approaches undertaken and in progress.
• Consider potential dissemination of successful local engagement approaches.
• Hear from other research programs about successful engagement approaches.
• Consider potential new approaches for engagement in biobanking.
• Discuss concepts for respectful best practices for engagement in biobanking.